Friday, July 28, 2017

Charlie Gard has died, his parents say

Connie Yates and Chris Gard say critically ill 11-month-old boy has died at hospice days after they ended a five-month legal battle

Charlie Gard was diagnosed with a rare inherited disease in September 2016. Photograph: Handout/PA

Guardian staff

Friday 28 July 2017 13.44 EDT First published on Friday 28 July 2017 13.16 EDT

The parents of Charlie Gard have said their 11-month-old, critically ill son has died after being transferred to a hospice.

Connie Yates and Chris Gard on Monday abandoned their five-month legal battle to have him moved from Great Ormond Street hospital (Gosh) and taken to the US for experimental treatment, after acknowledging that his condition had deteriorated.

They then fought to have him taken home, saying it was their "last wish" for Charlie to die at home.

However, the couple were unable to find a 24/7 intensive care team to keep him alive and he was taken to an unspecified children's hospice on Thursday, where he died the following day.
In a statement, Yates said: "Our beautiful little boy has gone, we are so proud of you Charlie."
She and Gard had wanted to spend up to a week at the hospice with Charlie before he was taken off a ventilator, but the high court ruled that this would require a specialist team to stay with him round the clock in the hospice.

After his parents were unable to source such a team, the judge, Mr Justice Francis, said an alternative plan should be put in place involving a much shorter time spent at the hospice on life support.
Hundreds of people, who called themselves Charlie's Army, supported the campaign for him to receive treatment in the US, raising £1.35m.

A spokeswoman for Gosh said on Thursday: "The risk of an unplanned and chaotic end to Charlie's life is an unthinkable outcome for all concerned and would rob his parents of precious last moments with him.

"As the judge has now ruled, we will arrange for Charlie to be transferred to a specialist children's hospice, whose remarkable and compassionate staff will support his family at this impossible time."
More to follow ...

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